So Pathetic

Don't laugh, this is my view several times I day. Don't get me wrong, I understand that Ryan does not feel good most of the time, but holding a 32 lbs. child all day starts to wear on you. But really, could you say no to that face. Anyways I have been wanting to capture his pathetic face so I would have proof that he can manipulate me to the core.

On a side note the boys health is the same. We have completed their preliminary testing and now have to do base-line tests before we can start the Enbrel shots. We will be giving them shots 2 times a week (each) and re-evaluate their health at the end of 6 months to see if we have noticed any improvements. Luckily the Rheumatology department at Primary Children's are going to fight the insurance company about picking up some of the cost of this EXPENSIVE medication. Although, they have used Enbrel shots for lots of kids with JRA, Davin and Ryan will require twice the amount of other kids their age so we have to monitor them closely. It is an immuno-suppressive medication so we will be a little crazy about being around sick people, but hopefully the medication will work, their bodies will tolerate it well and their illness will go into remission soon. Of course with a rare disease, you never know what will happen so for now we are hoping this will bring a little normality to their lives. They are concerned about Davin's size, I guess his BMI is only 7% compared to Ryan's 100%. They are not sure why he is so small since there is no genetic predispositions and TRAPS is not known to cause waisting. We are interested to see if treatment will help him bulk up to a healthier size. Since there are less than 25 children right now with the disease, they are not sure if there is a correlation or not. I guess anything is possible right?