Trevor's Surgery

Trevor had surgery today to remove a couple kidney stones that just weren't passing. They were able to get 4 stones, two were blasted very nicely, however, the other two had to be removed by the MD. Since there were some concerns with bleeding, they were not able to remove the two larger stones that are still in his kidney. Instead, they want him to come back in for a second procedure in a couple of weeks to remove them. He is still in a lot of pain from the stent they had to leave in. Hopefully he will be feeling better soon! Also, just wanted to wish everyone a very happy and safe thanksgiving.

Melting Popsicle and So Much More

This week has turned out very eventful. Sometimes I wonder if we will ever get back to "normal". Sunday, as we were leaving for church, we got the call that my Grandfather Taggart was very sick. We were able to be with him during his last couple of hours. He was a very strong man who loved his family and country. He will be missed.

On Monday Davin decided to "help" by putting the Popsicles back in the fridge instead of the freezer. My coveted all-fruit Popsicles at that. Also on Monday, Dr. Krantser's, who is the leading expert on TRAPS in the world, assistant called me about getting the boys into the NIH for research. So needless to say, more paperwork, Md's and research had to be done. In fact I didn't even notice the melting Popsicles in my perfectly groomed fridge until the sticky damage was done. YUMM. Tues I was back to the MD's and rushing to get pictures and paperwork in the mail. Wed we were at Primary Children's Hospital to meet with Gastroenterology. We did not get as many answers as we would have liked, just more blood work and "wait and see" answers. Basically I was told that potty training Davin should be one of the last things on my list since we don't know how to treat his condition. In the hospital Ryan had an accident so we rushed home instead of going to the Zoo. On the way home, you guessed it, Ryan threw-up. After cleaning him, I put him down for a nap, only to have him wake-up one hour later screaming. For the next two hours all I did was hold him with his feet to his chest. As he cried. Since we just got back from Gastroenterology, I didn't know who to call. An hour later he went to the bathroom and I noticed blood. After that he was fine. Let's just say, I was glad to go to Enrichment Night. Thanks Elodie for taking me!

Finally after I came home from Enrichment, Trevor asked what I needed. I said, "Sleep and some time with no medical issues". Well, true to his word, he gave me 7 hours before waking me up in incredible pain. When Trevor asked me to take him to the ER, I knew he was not kidding. So come to find out he has kidney stones. Since the biggest was 5mm they gave him a lot of pain meds and he is trying to work through the problem now. Luckily, Ryan seems to be feeling better today- just moody! So in the end, I guess the coveted-melting-Popsicles were not that big of a deal, however, one sounds good right about now!

24 Month and Counting

So today was the day I put Davin's pants on the last notch. This is a good thing because even though he is small, he still has height and 18 month pants are not cutting it anymore. Now he can hold up most 24 month pants with diapers on. This is a huge step for him. He can wear 3T tops because it doesn't matter how big around those are, he just needs height. I don't know what we are going to do when he is potty trained. Next week he is back at Primary children's to see Gastroenterology , so I'm hoping that they will have some practical answers. I think he is hypotonic as well as having TRAPS. Since he will be 4 next month and still showing issues we are hoping to get him the help he needs.

As far as the shots are going, it couldn't be better. I'm getting used to mixing the solutions, drawing, prepping and injecting my kids. The needles are small so it is not as bad as it could be. I honestly don't know how parents of diabetic kids do it day in and day out. 4 a week is enough for me.

I'm doing well, still VERY tired all the time. Luckily the pain is not bad, in part because I'm still quite numb from my surgery in May and I kind of know what to expect. My MD's said that they could not find any ovarian cancer so I am very excited. The survival rate of stage 3 ovarian cancer is 25% and I had a hard time wrapping my mind around that. The ovary was the size of a grapefruit and severely infected with some other concerns so they took it. They are 100% confident that they got all the uterine cancer and since the margins were clean I don't have to worry about it anymore. I also have not lost as much hair as I thought I would. Honestly I don't know how people do this.

Finally, to my surprise --- or maybe it was wishful thinking --- but Tyler and I do not have TRAPS. I was hoping it would explain the uterine cancer cells for me and Tyler's Autism, but I guess we will just keep those things separate. So our assumption is that Trevor has it, and I thought he was the healthy one! There has just been too many health issues in the last 4 years. I really feel like I should be getting a medical diploma right about now or at least some deep discounts!

So Thankful

I'm grateful for such great family and friends that have been so wonderful! I'm doing better, my fever is gone and all the blood work is looking better. The Md's still are not sure what happened but we are grateful that they ruled out complications from the surgery. Another day in the hospital was not fun and Tyler asked me if I can postpone any more surgeries until after the holidays (poor kids), but when I started spiking fevers over 104 a week after surgery, the doctors didn't want to take any chances. I have a couple more weeks until I'm back in full force (heaven help us) so I'm looking forward to a great holiday season. Again, I can't thank people enough. Beacuse of medications, I have had a really hard time staying awake and lifting my kids so I am grateful for every act of kindness. Thank You!!!