I'm Drowning

OK so I'm not really drowning, but it sure has felt like there is not enough hours in a day!!! This is why it has taken me so long to post. The kids and I were able to go to the Navajo reservation in New Mexico and visit some of our dearest friends. We were able to take all the generous donations to their school to help those families with supplies. Thank you to everyone who gave of yourselves. It was so appreciated. It was such a wonderful experience, the only regret is that Trevor was not able to come with us. I also started my new job this week, and all I can say is the training is the most intense training I have ever been in. It is fascinating and I'm sure once I get the hang of it, I will be easier. We have one month of full time in class room training then two months of dispatch training. Then 6 months of probationary training until we are able to move to the level 1 position. They teach us to speak in codes and manage, multiple phones- 3 computer screens- several radio channels- two keyboards and multiple agencies/cities at the same time. I had no idea it was this intense. I am so grateful to my mom and friends who have helped me with the kids. It has been hard for me to not be in contact with them whenever they need me. You know the "poof what do you need, poof what do you need" scenario. Anyways Trevor and the boys are surviving and Tyler is doing a great job taking on more responsibilities around the house. At any rate, things will get better once I learn to swim!

National Institute of Health

So we just received word that Dr. Kastner and Dr. Holland want to see the boys at the Fever Clinic at the NIH the beginning of next year. We hope that this will give us some more detailed information on how to manage their disease. We have taken them off the Enbrel shots and both boys are now on Septra to bring down their T-cells and hopefully pull their immune systems back in line. Also, we think that Davin can build white blood cells to immunizations. So far the data is not conclusive, however, we think that he just might require more immunizations to get his titers to a protective level. We will find out in a month if it works. Hopefully he will not need a surgical port and monthly IVIG treatments. Right now we are hopeful that he will be able to attend school in the next year or two without issues. At any rate this is all good news:)