Davin Turns 4- Happy Birthday

Yesterday, December 21st- Davin turned 4 years old!!!! Our outgoing, feisty, determined, video playing, energetic, cuddly, miracle child survived another year. He has been such a blessing in all our lives and has taught us so much. He definitely has focus and knows what he wants and is not afraid to tell us. We were so nervous the day he was born, all we wanted was to hold a healthy baby in our arms. As only in Davin style, he came out feet first and after his head was unstuck he definitely had some healthy lungs. That was a sound we thought we would never hear, and we have heard it over and over again! Davin loves his friends, family and of course video games. Although he is small he is fast and can be the most loving child we know. It is not uncommon for him to grab a strangers hand, sit in their laps and just strike up a conversation. So to our little Finn, we love you and are blessed you taught us that miracles can happen. Happy Birthday

You Say It's Your Birthday

Yes Ryan is TWO years old today. I can't believe that my baby is now a toddler- so fun. He is such a great kid and is our resident "bulldozer". His MD was very pleased with his continued growth. He is still off the charts for height but over 98% for weight and 94% for head. Yeah I know, feel sorry for us! We are going to start calling him gigantor. He is talking a lot more, however, if you ask him what his name is he will say "I'm baby". Only now has he been interested in a Binky and is fascinated with other babies. He thinks he is potty trained, and I guess in a way he is-- if you don't mind cleaning up messes here and there. I'm grateful he is still in his crib (it gives us a little more peace at night). However, since he is so big, he has to go to a toddler car seat which he can get out of easy. So guess what he is getting for his birthday. Today he has been all smiles, singing himself happy birthday to baby- everywhere we go. His grandma sent him a card with Spider man- Awesome- and then he spent several hours at Chuck E. Cheese with best friend Parker (and guests). Teaching him to be the center of attention might have it's down sides, but for today it is priceless. I'm so glad that we decided to not give up after Davin and had him in-spite of the risks. He has brought smiles to our faces, love to our hearts and faith to our souls! So happy birthday little fry, we love you!

Happy Birthday To Me

Yes, I'm 23 again! It has been a wonderful day, starting from getting a full night sleep to an uninterrupted bath. The icing on the cake was my friend Liz taking my kids for a couple of hours so I could go see Twilight by myself. It was awesome, thanks Liz! Then we had a great dinner and of course I was spoiled with gifts and food. So exciting, so fun. You know you are only 23 once (or twice or thrice or- OK I'll just stop now.) Thanks to all my family and friends for making today special! Thanks to my kids for the yummy cake. Yes you get to finish it all! Love You-

Medical Diaries

So I feel like all I have to say is medical. I really do have other things, however, not much. It is exciting that today and tomorrow there are no Md's, Hospitals or paperwork; now I can focus on Birthdays and Christmas. We had a wonderful Thanksgiving at Sari & Brett's with Trevor's side of the family. Sadly, my Aunt Delores (the aunt who was living with my parents) passed away Thanksgiving. She didn't look well at my grandfathers funeral and suffered from many organ problems. The funeral will be this Friday in my parents ward building. I feel so bad for my grandmother who in 10 days lost her husband and only sibling/twin sister. I don't know how anyone is holding up anymore.

We met with Dr. Osgethorpe the other day and he is excited to take the boys cases. He said that the boys are "famous" in his medical circle. Some Md's are frustrated they missed the diagnosis and others are just happy to know what the cause is. He also has encouraged us to look to the NIH for some answers and better understanding of the disease process. He is also not convinced that Davin's other problems are not related to TRAPS since there are not many diagnosed cases. There is a 50% chance that they have the HLA-B27 gene as well. So we will probably need several specialists in DC that can sort this all out. Trevor is felling better so hopefully they can blast the other stones before they start to pass and cause too much pain. He is sched. for next Wed.

Well I better go Christmas and Birthday stuff awaits. So much fun!!!!