We recieved the results for Davin's genetic testing. He is positive for TRAPS as well. We were not very surprised since it explains his recent 104 degree temperature and symptoms. It also explains a number of his health issues over his lifetime. We are going to meet with some specialists and try to sort out his issues. Since this disease is in every cell of the body, some of his issues differ from Ryan's so we might have to see different specialists and convince them that TRAPS really does exist. Some MD's have been supportive and some think we are inventing this. If I could invent anything it would be a super vitamin that is a "cure all" and sell it for three easy payments of $39.95. OK just kidding. At any rate, we feel bad for Davin, but are happy to know what is wrong. Hopefully we can find effective ways to help him be happy & healthy.
Thursday, October 2, 2008
Davin's Testing
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4 comments:
So not fun, but nice to finally have a diagnosis. I pray that everything will go better for you all and that you can fall into the hands of just the right doctors to help you.
Jen, as I've always said, you always knew something was seriously wrong and it's so nice to finally have proof! This is still so difficult, I'm sure, but KNOWING is amazing. Keep up the great work!
What a brave mom you are! Thanks for thinking of me even when your life is crazy with illnesses and tests. You are truly amazing-thanks for all of the yummy treats!
Just wanted to say that I love you! Thanks for the fun chats and encouragement. You are a great mother and I pray that all will be well with your family.
Cheers :)
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