National Institute of Health

So we just received word that Dr. Kastner and Dr. Holland want to see the boys at the Fever Clinic at the NIH the beginning of next year. We hope that this will give us some more detailed information on how to manage their disease. We have taken them off the Enbrel shots and both boys are now on Septra to bring down their T-cells and hopefully pull their immune systems back in line. Also, we think that Davin can build white blood cells to immunizations. So far the data is not conclusive, however, we think that he just might require more immunizations to get his titers to a protective level. We will find out in a month if it works. Hopefully he will not need a surgical port and monthly IVIG treatments. Right now we are hopeful that he will be able to attend school in the next year or two without issues. At any rate this is all good news:)