
Davin's surgery went well yesterday. The good news is that they doctors were able to see what we have been reporting to them. Now we have medical documentation that there is a reason he is getting recurrent croup and laryngitis. He had marked inflammation on his larynx and his trachea was riddled with tinny bumps. His lungs looked great so his inflammation is located in his upper respiratory tract. They sent several biopsies to a pathologist so hopefully they will reveal more information. The difficult news is that they were not sure exactly how to treat what they saw. There is just not enough documented about TRAPS to say definitely that it is the reason for his respiratory concerns. More often kids with uncontrolled GERD have similar findings. The hope is that by treating him for GERD, the recurrent croup, sinus and larynx inflammation will disappear. I sure hope so, however, my gut tells me that this is not what the problem is. Time will tell, so for now we have added two more medications to his routine. If anyone has had experience with this or any insight, I would love to hear from you. Davin is struggling a little still with his breathing, but he should get better soon! Here is to hoping:)
Saturday, May 16, 2009
Davin's Surgery
Posted by
Jen
at
9:31 PM
Labels: Davin's Surgery
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2 comments:
oh i hope he gets better soon!! thanks so much for coming and supporting me!! i miss you guys and hope to be able to come play with the boys soon! :)
I hope he gets feeling better soon! And that (fingers crossed) the new meds will help. You and your family are such good examples of perseverance with a smile. Jen, you are always smiling! And I love you for that! Keep us updated with everything.
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