I'm so excited for Spring. Last week we had so much fun playing outside and going from park to park. I even signed Davin and Tyler up for swimming lessons next month. I decided not to do the "mommy and me" class for Ryan b/c I thought Davin might need me to cheer him on a little too much. Winter is always a little hard on us, not that the rest of the year is much different, it is just people get a little more stressed out with children who appear "sick" more in the winter than in the summer. In the summer most people just think my kids have bad allergies. I need to find a way to bring more awareness to the boys disease. I was trying to explain TRAPS to a doctor who was treating Davin on an emergency basis a couple of weeks ago. The MD said "I don't know about that disease, are you sure?" and "that is a very interesting story". Seriously, I thought of just telling him how to write the RX so we could be on our way. He felt that his symptoms warranted more investigation, as if his file is not thick enough. At any rate, I am very grateful for Spring to come. I was hoping to get the boys into the NIH this summer, but I don't know if I can sell that many cookies between now and then to afford the plane tickets. It would be nice to get the boys into the MD who found the disease so I can ask some of those questions that have been bothering me. For now I will enjoy those daffodils that just bloomed and wait for sunnier days. 
Sunday, March 22, 2009
Spring Is In There Air
Posted by
Jen
at
4:33 PM
Labels: Spring Is In The Air
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4 comments:
Amen! I'm so glad spring is so close! I think we should have a big neighborhood garage sale to get you out to NIH. Heaven knows you need to go!
I hear ya on the spring thing. It is hard to be trapped inside...there is only so much paper Addison can color on. I hope you guys get more answers on the boys. I can't imagine how frustrating that is. Addison keeps talking about spending time with them. She is excited about your offer. :) Watch out!
Sari
Cookies?! Did you say you are selling cookies? :) I'd love to help out. It would be great if you could make it out to NIH. Love ya!
Well spring was in the air here in Logan and then the snow sucked it away again. But I'm glad you got to get out! Nothing like fresh air!! We love you guys!
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