Medical Diaries

So I feel like all I have to say is medical. I really do have other things, however, not much. It is exciting that today and tomorrow there are no Md's, Hospitals or paperwork; now I can focus on Birthdays and Christmas. We had a wonderful Thanksgiving at Sari & Brett's with Trevor's side of the family. Sadly, my Aunt Delores (the aunt who was living with my parents) passed away Thanksgiving. She didn't look well at my grandfathers funeral and suffered from many organ problems. The funeral will be this Friday in my parents ward building. I feel so bad for my grandmother who in 10 days lost her husband and only sibling/twin sister. I don't know how anyone is holding up anymore.

We met with Dr. Osgethorpe the other day and he is excited to take the boys cases. He said that the boys are "famous" in his medical circle. Some Md's are frustrated they missed the diagnosis and others are just happy to know what the cause is. He also has encouraged us to look to the NIH for some answers and better understanding of the disease process. He is also not convinced that Davin's other problems are not related to TRAPS since there are not many diagnosed cases. There is a 50% chance that they have the HLA-B27 gene as well. So we will probably need several specialists in DC that can sort this all out. Trevor is felling better so hopefully they can blast the other stones before they start to pass and cause too much pain. He is sched. for next Wed.

Well I better go Christmas and Birthday stuff awaits. So much fun!!!!