No More Junk Food

We met with the TRAPS "expert" here in Utah. I was very impressed by him. He is actually colleges with the MD that is the leading TRAPS expert in the world. There where some questions I had that he was going to ask him for us. Apparently there are about 100 cases in the world and most people come to the US for treatment at the NIH. There is also another little girl here who is a year older than Ryan that they have been treating. This gives me hope that he will not be such an experiment. Even though he is the youngest case right now, the shots we might do with him have been studied on kids with Juvenile RA. We are not sure how it will work for TRAPS, but we do know what type of side effects we will be dealing with. The bad news, Dr. Prahalad is moving to Atlanta in January. Yeah, I know, that is all we needed. He said we can come see him there or call him anytime, which is good news. I think once we find out how widespread this is in our family we will have to travel for treatment. Now on to explaining the "NO MORE JUNK" title. I think if I write it then I will be more compelled to follow through. I have decided to give up junk. I am going to stay away from sugar and highly processed foods. I know they cause all kinds of problems and are not helping my situation any. I found out this last week that I have a type of endometrial hyperplasia and they are concerned they didn't get it all with the ablation. So if cancer or abnormal cells come back, they will not know until it is upon me "like wild fire". It is looking like I will probably have another surgery this year, however, I'm not convinced these abnormal cells are not related to the TNF in TRAPS. So, next week I am scheduled for yet another procedure to see if inflammatory cells are in my colon as well. I think in the next couple of weeks I will know more about what I am up against. It still makes it hard to sleep at night, however, my gut tells me this is all related to TRAPS. I am so anxious to get my testing back now. So in the end, I am going to be careful about what I eat. I figure it is a pro-active thing I can do with no negative side effects. So any support I can get would be great! I'm not in the mood for cancer, chemo. or one more medical mystery. I need to sleep peacefully again.