My X-Men

So we met with the pediatric infectious disease MD on Thursday. He went over all of Ryan's medical records and had some new ideas for us. Since there are so many variables, he is going to "round table" Ryan's case with the heads of the other pediatric departments at Primary Children's Hospital next week. One good news is that he feels his "infections" will not get worse and that his immune system is doing what it is supposed to do in response to infections. That is the good news. The bad news is we may never know what is wrong with the boys. He feels strongly that this is a genetic mutation- either cyclic neutropenia, Hiberian fever, pfapa or a ciliary dysfunction. We are going to do some testing so we will know how to treat him when he gets sick. He also told us that since it is probably a genetic mutation and not an immune function, he is not contagious when he presents with "cold symptoms" so there is no need to run the other way. After his surgery the MD said to take him out in public because he does not feel exposure to infection is the cause of the illnesses. So we are so excited that we don't have to live in fear of germs anymore. Hopefully this is one step closer to normality.